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The following six chapters are currently available. Click on an icon to visit the appropriate chapter. Note that the chapter on 'data discovery' will be available in the second half of 2018.

Plan

In this introductory tour, you will become aware of what data management and a data management plan (DMP) is and why it is important. General concepts such as social science data and FAIR data are explained. Also, we will get you started on writing your DMP.

Organise Document

If you are looking for good practices in designing an appropriate data file structure, naming, documenting and organising your data within suitable folder structures, this chapter is for you.

Process

You will get acquainted with the topics of data entry and coding as the first steps of data management. To maintain the integrity of your data we wil guide you in choosing the appropriate file format. Also, version and edition management are highlighted.

Store

To be able to plan a storage and backup strategy, you will learn about different storage and backup solutions and their advantages and disadvantages. Also, measures to protect your data from unauthorised access with strong passwords and encryption are explained.

Protect

This chapter highlights your legal and ethical obligations and shows how a combination of gaining consent, anonymising data, gaining clarity over who owns the copyright to your data and controlling access can enable the ethical and legal sharing of data.

Archive Publish

When you complete your roundtrip through this chapter you will have learnt to differentiate between currently available data publication services. Also, stepping stones to promote your data are presented.

Discover

How can you discover and reuse existing or previously collected datasets?

To get started with the first tour, simply click the button below.

The Expert Tour Guide on Data Management is created for CESSDA by , AUSSDA , , , , , GESIS , , , So.Da.Net and and is illustrated and edited by Verbeeldingskr8 . The authors are mentioned by name in the overview of the relevant chapter(s). DANS was in the lead of creating this tour guide.

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(DANS) | Project leader

Having a background in learning and knowledge sharing it was a great pleasure to coordinate the creation of this Expert Tour Guide.

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6. Archive Publish

LICENCE

The Expert Tour Guide on Data Management by CESSDA ERIC is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License . All material under this licence can be freely used, as long as CESSDA ERIC is credited as the author.

For more in-depth knowledge of local regulations, funder requirements and best practices check our event calendar for local workshops. If you are a trainer and would like to organise your own workshop please contact training@cessda.net .

Over the last decade in the UK (between 2003-2005 and 2013-2015), myeloma AS incidence rates for males and females combined increased by 17%. In males AS incidence rates increased by 18%, and in females rates increased by 14%.

Myeloma (C90), European Age-Standardised Incidence Rates, UK, 1993-2015

Myeloma incidence rates have increased overall in all broad adult age groups in males and females combined in the UK since the early 1990s.[ 1-4 ] Rates in 25-49s have increased by 52%, in 50-59s have increased by 28%, in 60-69s have increased by 24%, in 70-79s have increased by 32%, and in 80+s have increased by 38%.

Myeloma (C90), European Age-Standardised Incidence Rates, By Age, UK, 1993-2015

For myeloma, like most cancer types, incidence trends largely reflect changing prevalence of risk factors and improvements in diagnosis and data recording. Recent incidence trends are influenced by risk factor prevalence in years past, and trends by age group reflect risk factor exposure in birth cohorts.

See also

Myeloma mortality trends over time

Myeloma survival trends over time

Myeloma risk factors

Cancer incidence statistics for common cancers in the UK

References

About this data

Data is for UK, 1993-2015, ICD-10 C90.

Last reviewed:

Projections of incidence for myeloma

Myelomaincidence rates are projected to rise by 11% in the UK between 2014 and 2035, to 12 cases per 100,000 people by 2035.[ 1 ] This includes a larger increase for males than for females.

For males, myeloma European age-standardised (AS) incidence rates in the UK are projected to rise by 13% between 2014 and 2035, to 16 cases per 100,000 by 2035.[ 1 ] For females, rates are projected to rise by 7% between 2014 and 2035, to 10 cases per 100,000 by 2035.[ 1 ]

Myeloma (C90), Observed and Projected Age-Standardised Incidence Rates, by Sex, UK, 1979-2035

Download thedata table (xls) or email Stats.Team@cancer.org.uk for powerpoint

It is projected that 8,888 cases of myeloma (5,229 in males, 3,659 in females) will be diagnosed in the UK in 2035.

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17. Negotiate everything.

Negotiate everything.

CreateSpace and other self-publishing companies are always offering special deals on their various services. There isn't whole lot of leeway, but it doesn't hurt to ask for deal sweeteners -- like more free copies of your book (they often throw in free copies of your book). It also doesn't hurt to ask about deals that have technically expired. In sales, everything is negotiable. Remember, these people have quotas and bonuses at stake. (For their sake, I hope they do anyway).

18. Ask a lot of questions and don't be afraid to complain.

Ask a lot of questions and don't be afraid to complain.

When I self-published, I paid an extra $300 fee to be able to talk directly to a live person on the phone for customer support. Companies like Lulu and CreateSpace have complete DIY options and require no upfront setup fees. That's great, but when you're dealing with a superbasic package, you're most likely going to be doing customer support via e-mail or IM, and get very little hand-holding. It's nice to be able to call up and complain (in a nice way, of course) directly to a live person on the phone, so take that into account when you're examining your package options.

19. Self-publishing is a contact sport.

Self-publishing is a contact sport.

The biggest mistake people make when it comes to self-publishing is that they expect to just put out a book and have it magically sell. They might even hire a publicist and expect something to happen. It's just not so. You have to be a relentless self-promoter. Unfortunately, a lot people just don't have the stomach or time for it.

What's the secret to marketing your book successfully? Well, the first thing I advise -- and I'm not alone here -- is to come up with a marketing plan well before you publish your book. The plan should have at least five avenues for you to pursue because chances are you're going to strike out on a couple of lines of attack. It's easy to get discouraged, so you have to be ready to move on to plan c, d, and e (and the rest of the alphabet) pretty quickly.

These days there's a lot of talk about a "blog strategy," and many well-known authors do virtual book tours where they offer up interviews to various blogs. You probably won't have that luxury, but you can certainly research what blogs might be interested in your book and prepare pitches for them. There are social media campaigns to wage, local media angles to pursue, organizations to approach, and all kinds of out-of-the-box gambits you can dream up. None of this will cost you a whole lot -- except time and perhaps a little pride.

Then there's the stuff you pay for. And it's tricky to judge what's a good investment and what's not because the results vary so much from book to book. A friend of mine who has a "real" book from a traditional publisher experimented with placing $1,000 in Facebook ads targeted to people in "cold" states (his book is called the History of the Snowman and it does very well around Christmas). He's still trying to figure out what impact the ads had, but Facebook does have some interesting marketing opportunities. Google new for sale in China Givenchy White Urban Street Sneakers EidOh8JEyH
is another popular option. And a number of self-serve ad networks are popping up, including Blogards Book Hive , which allows you to target a number of smaller book blogs for relatively affordable rates.

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